It’s an exciting time for Lipedema Research, and we are excited to bring together the top medical researchers, surgeons and medical professionals from around the world to come together in support of finding a cure for this often misunderstood (and misdiagnosed) disease.
COURSE DIRECTOR:
Mark L. Smith, MD, FACS
Director, Friedman Center for Lymphedema Research & Treatment
KEYNOTE SPEAKER:
Professor Etelka Földi, MD
Physician-in-Chief of the Földi Clinic Special Clinic for Lymphology Hinterzarten, Germany
GUEST FACULTY:
Matthew Carmody, MD, Jens Diedrichson, MD, Susan Fried, PhD, Kimberly Gudzune, MD, MPH, Karen Herbst, MD, PhD, Guenter Klose, MLD/CDT, CI, Gwen Randolph, PhD, Stefan Rapprich, MD, Stanley Rockson, MD, Tilly Smidt, Patient Advocate, Catherine Seo, PhDc, Melody Swartz, PhD
Mark L. Smith, MD, FACS
Director, Friedman Center for Lymphedema Research & Treatment
KEYNOTE SPEAKER:
Professor Etelka Földi, MD
Physician-in-Chief of the Földi Clinic Special Clinic for Lymphology Hinterzarten, Germany
GUEST FACULTY:
Matthew Carmody, MD, Jens Diedrichson, MD, Susan Fried, PhD, Kimberly Gudzune, MD, MPH, Karen Herbst, MD, PhD, Guenter Klose, MLD/CDT, CI, Gwen Randolph, PhD, Stefan Rapprich, MD, Stanley Rockson, MD, Tilly Smidt, Patient Advocate, Catherine Seo, PhDc, Melody Swartz, PhD
Lipedema Symposium List of Weekend Activities
The Lipedema Symposium has sessions planned for medically trained professionals as well as for patients and their supporters. Friday’s Symposium includes the CME course Setting the Research Agenda For Lipedema: Steps Towards a Cure, directed by Mark L. Smith, MD, FACS. On Friday evening there is a cocktail reception and film premiere for the lipedema documentary
The Disease They Call FAT, a film by filmmaker and patient Catherine Seo.
MEDICAL PROFESSIONALS
THERAPISTS, PATIENTS & SUPPORTERS
Setting the Research Agenda for Lipedema:
STEPS TOWARDS A CURE
COURSE OBJECTIVE
Learn current methods for evaluating, diagnosing and treating Lipedema and understand pertinent physiology, research opportunities and obstacles to care.
Lipedema is an under-recognized condition characterized by the accumulation of subcutaneous fat in bilateral lower extremities, typically accompanied by tenderness, edema and bruising. Physicians frequently misdiagnose patients as being obese or having lymphedema leading to improper treatment and progression of symptoms.
Eventually Lipedema can progress to Lipo-lymphedema, where the progressive fat accumulation leads to lymphatic insufficiency. Exercise and weight loss tend to worsen the relative body disproportion as the fat is lost preferentially from the trunk rather than the legs resulting in patient frustration and poor compliance. This course will review the diagnostic criteria, work up and differential diagnosis for patients with Lipedema. Surgical and non-surgical treatment options will be discussed.
COURSE DIRECTOR:
Mark L. Smith, MD, FACS
Chief, Division of Plastic Surgery, Mount Sinai Beth Israel Director, Friedman Center for Lymphedema Research & Treatment; Professor, Department of Surgery, Icahn School of Medicine at Mount Sinai
DETAILS
Date: Friday April 17th, 2015
Time: 8:00 am – 4:30 pm
Location: W Hotel, Union Square,
201 Park Avenue South, (see map)
New York City, New York
Registration Fees:
$255.00 with CME Credits
$195 without CME Credits
Participants are required
to register online at
www.chpnet.org/cme
ACCREDITATION STATEMENT. Mount Sinai Health System Hospitals: Mount Sinai Beth Israel, Mount Sinai St. Luke’s and Mount Sinai Roosevelt, are accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
CREDIT DESIGNATION STATEMENT. Mount Sinai Beth Israel designates this live activity for a maximum of 7.00 AMA PRA Category 1 Credits TM. Physicians should only claim the credit commensurate with the extent of their participation in the activity
Lipedema Solutions Forum
PATIENT PERSPECTIVES
FORUM OBJECTIVE
While little is known about lipedema, there are recommended options that can be taken to reduce the impact and stop the progression of the disorder.
Lipedema Solutions Forum presents various methods to help in reducing the impact of lipedema on your quality of life. We will have sessions on the following:
• Dealing with Lipedema:
How to advocate for yourself with your healthcare providers
• Complete Decongestive Therapy:
Manual Lymphatic Drainage (MLD) & Compression
• The Role of Exercise: lymphatic yoga, exercise & meditation
• The Role of Diet: nutrition & supplements
• Surgical Treatment: pros & cons, a panel of women who have had liposuction
FORUM DIRECTOR:
Catherine Seo Director, Lipedema Simplified, LLC
Partnered with the Friedman Center for
Lymphedema Research & Treatment
Cambridge, MA
CO-CHAIRS:
Shari Fetzer, Chair, Lipoedema UK
Kimberley Montgomery, Chair, USA
DETAILS
Date: Saturday April 18th, 2015
Time: 8:00 am – 2:00 pm
Location: Mount Sinai Beth Israel
Phillips Ambulatory Care Center,
The Friedman Auditorium, 2nd floor
10 Union Square East (see map)
New York City, New York
Registration Fees:
$125 all participants
Special Pricing:
Non-physicians attending the Friday, April 17th Symposium and the Saturday, April 18th Solutions Forum: $225
Participants are required
to register online at
www.chpnet.org/cme
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Cocktail Reception & Film Premiere
FILM SCREENING
There are an estimated 17 million women in the USA that have the fat disorder lipedema and don’t know it, and many more globally. Filmmaker and patient Catherine Seo brings us on a journey of discovery, as she explores this misunderstood and commonly misdiagnosed disease.
When her own lipedema diagnosis was overlooked and surgery resulted in dire complications, Catherine began a journey of inquiry rather than face immobility and chronic pain. During her research, she traveled across the US and to Europe and the UK, looking for the answers to her many questions, interviewing experts and patients as she went along. As she began to understand the complexities of the little known fat disorder of lipedema and the prevalence of anti-fat bias in healthcare, she also discovered the innovation of a handful of doctors in treating this disease. As the pieces came together, a bigger story emerged. The documentary, The Disease They Call FAT, is that story. Produced by Lipedema Simplified Productions in partnership with the Friedman Center for Lymphedema Research & Treatment.
Donations are invited. Please send your tax-deductible donation to
https://philanthropy.mountsinai.org/lymphedema
HOSTED BY:
Catherine Seo, PhDc
Founder, Lipedema Simplified
Director & Producer
Mark L. Smith, MD, FACS
The Friedman Center for Lymphedema
Research & Treatment
Executive Producer
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DETAILS
Date: Friday April 17th, 2015
Times:
Cocktail Reception
4:30 pm – 5:30 pm
Film Premiere
5:30 pm – 7:30 pm
Location: W Hotel, Union Square,
201 Park Avenue South,
New York City, New York
see hotel website
Registration Fees:
FREE! This event is free. Tickets are for Attendees of the Symposium & Solutions Forum only.
Participants are required
to register online at
https://lipedema-premiere.eventbrite.com
Get Involved! Join the Lipedema Project Community
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About The Lipedema Project
The Lipedema Project was founded in 2014 by Dr. Mark L. Smith, MD, FACS and Catherine Seo, PhD to begin the research and treatment for lipedema, a chronic fat disorder. Lipedema is a disease involving abnormal fat deposition that can result in pain, immobility, and lymphatic disturbances. Lipedema progresses over time often developing lymphedema, a chronic condition called lipolymphedema.
With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed, that resources are invested in understanding this disease and how it can be treated, and that patients have the support, knowledge, and options to manage these chronic conditions.
Currently, The Lipedema Project, Inc. is a 501(c)3 non-profit organization devoted to increasing awareness and providing education, research, and treatment for lipedema through online and face-to-face programs and building community.
The lipedema documentary is available for viewing on Facebook, Lipedema – The Disease They Call FAT.
The book is available on Amazon, Lipedema – The Disease They Call FAT: An Overview for Clinicians.
