Lipedema Support Community

Welcome to the Lipedema Project, an organization dedicated to the fat disorder lipedema. Our mission is to raise awareness, provide education, support research, and encourage community engagement regarding lipedema. We offer information and support for women who think they may have the disease (lipedema affects women almost exclusively), as well as research and education about lipedema for clinicians who wish to better serve their patients.

The Lipedema Project is proud to partner with Inspire, the leading social network for health, to offer a place where patients and caregivers can connect and support one another in a safe, permission-based manner.  Inspire was created with the belief that patients and caregivers need a safe and secure place to support and connect with one another.

Join the Lipedema Project’s free support community at Lipedema.Inspire.com

The Lipedema Project is proud to support our free online community on Inspire.com for people dealing with lipedema. This free online community offer peer-to-peer support so you can connect with people who are in your shoes. You can start or respond to threads on the community, upload photos and search for specific topics to find other members who share the same interests.

To become a member of Inspire you need to register for an account. Click on the community link above. Click the “Sign up today” button at the top of the community home page. This will take you to the registration page, and after you complete the form, Inspire will send you an email to activate your account. Regardless of how many communities on Inspire you want to join, you only need to create one account. If you have any trouble signing up or finding the right group, you can email [email protected] for help.

    About The Lipedema Project

    The Lipedema Project was founded in 2014 by Dr. Mark L. Smith, MD, FACS and Catherine Seo, PhD to begin the research and treatment for lipedema, a chronic fat disorder. Lipedema is a disease involving abnormal fat deposition that can result in pain, immobility, and lymphatic disturbances. Lipedema progresses over time often developing lymphedema, a chronic condition called lipolymphedema.

    With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed, that resources are invested in understanding this disease and how it can be treated, and that patients have the support, knowledge, and options to manage these chronic conditions.

    Currently, The Lipedema Project, Inc. is a 501(c)3 non-profit organization devoted to increasing awareness and providing education, research, and treatment for lipedema through online and face-to-face programs and building community.

    The lipedema documentary is available for viewing on Facebook, Lipedema – The Disease They Call FAT.
    The book is available on Amazon, Lipedema – The Disease They Call FAT: An Overview for Clinicians.