Lipedema Social Resources
Support in any situation can be helpful, but when it comes to navigating a complex disorder that has historically been ignored, support can make all the difference and is invaluable. There are many blogs, support groups, and Facebook groups of women who are at different stages of the journey. Join groups that call to you, and look for and connect with like-minded people. We are not alone, and support from the worldwide lipedema community can help YOU!
Please respect the privacy of patient groups. Review and agree to observe the rules & guidelines set forth by each group, though similar, each group has it’s own guidelines.
Blogs about Lipedema
Big Leg Woman
This blog, authored by lipedema sufferer Jane, documents Jane’s struggle with lipedema while educating about lipedema and related conditions.
Blog author Sarah shares her story and experience living with lipedema and lymphedema, having weight loss surgery, and engaging in health care and insurance advocacy for these conditions.
Dr. Dennis Wolf’s Blog
This blog post documents the experience of one of Dr. Wolf’s lipedema patients having Vaser liposuction with him.
Leigh’s Lipedema Journey
This blog chronicles Leigh’s journey with surgical treatment for stage 3 lipedema.
This inspirational blog documents Patricia’s journey with lipedema, love of fitness, and continuing to exercise despite the challenges that lipedema presents.
Erica’s personal blog is a collection of research, questions, findings, and experiences in the hopes of bringing more visibility to lipedema and helping other lipedema patients.
Author and lymphedema specialist Joachim Zuther writes this blog, which offers information about lymphedema treatment and management, as well as resources for finding therapists.
A web community whose mission is to inform lymphedema patients about the condition’s causes, complications, and treatments, and to share the knowledge that there is hope despite having the disease. The site includes a support forum, a wiki, and articles about lymphedema.
Lipedema Facebook Support Groups
Worldwide Lipedema Project Facebook Pages
Ambassadors of The Lipedema Project host multiple Facebook pages around the world for announcements and up to date news about lipedema and relevant issues. Find your local Facebook page here!
Facebook Groups US
Arizona Lipedema Ladies
Cheyenne’s Lipedema Journey
Friends of Lipedema Sisters USA
Lipedema Lipo Beverly Hills Dr Amron
Lipedema Sisters Chicago
Lipedema Sisters Mo/Kan
Lipedema Sisters Texas
Lipedema Sisters USA
Lipedema USA Español
Lipo for Lipedema in Beverly Hills
Lipo for Lipedema in St. Louis
Loving Life With Stage 1/2 Lipedema
Lymphedema and Lipedema Free Donated items
My Hump, My Bumps, My Lipedema Lumps…This Lippy Girls’ Journey
Ohio Lipedema Sisters
Paleo Diet for Lipedema Ladies
Rocky Mountain Lipedema Sisters
Vegans with Lipedema
Virginia lipedema/lymphedema support
Wa State Lipedema Sisters USA
Facebook Groups UK
Facebook Groups Australia
Facebook Groups Canada
Facebook Groups Chile
Facebook Groups Italy
Facebook Groups New Zealand
Facebook Groups International/For Everyone
Compassion Warriors: Lipoedema 3 & 4
Gluten-free Lipedema Ladies
International Lipedema supportgroup
Lipedema Comedy Spotlight
Lipedema Lifestyle Project
Lipedema Lymphedema Used and New Products/Clothing
Lipedema/Lymphedema WARRIOR TRIBE
Lipedema REV’N (Research, Education, Volunteer Network)
Lipedema Sisters Prayer Group
Lipedema Support Group
Lipo for Lipedema in Germany
Liposuction for Lipedema
Lymphedema/Lipedema PT/Patient Get Together
About The Lipedema Project
The Lipedema Project was founded in 2014 by Dr. Mark L. Smith, MD, FACS and Catherine Seo, PhD to begin the research and treatment for lipedema, a chronic fat disorder. Lipedema is a disease involving abnormal fat deposition that can result in pain, immobility, and lymphatic disturbances. Lipedema progresses over time often developing lymphedema, a chronic condition called lipolymphedema.
With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed, that resources are invested in understanding this disease and how it can be treated, and that patients have the support, knowledge, and options to manage these chronic conditions.
Currently, The Lipedema Project, Inc. is a 501(c)3 non-profit organization devoted to increasing awareness and providing education, research, and treatment for lipedema through online and face-to-face programs and building community.
The lipedema documentary is available for viewing on Facebook, Lipedema – The Disease They Call FAT.
The book is available on Amazon, Lipedema – The Disease They Call FAT: An Overview for Clinicians.