Lipedema is a fat/lymphatic disease involving abnormal fat deposition resulting in pain, immobility, and lymphatic disturbances. With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed and that resources are invested in understanding this disease and how it can be treated.

Lipedema primarily affects women. It initiates at times of hormonal disturbance, puberty, pregnancy, peri-menopause, and with gynecological surgery.

LIPEDEMA PROJECT’S MISSION: Raise awareness through advocacy, education, and research to improve women’s lives with lipedema and related disorders.

LIPEDEMA PROJECT’S VISION: Be the voice for women living with lipedema.

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All proceeds to go to support the work of The Lipedema Project, Inc.

Lisa Duerre

Lisa Duerre
Managing Director, The Lipedema Project

Lisa Duerre built her expertise in leadership development during her 20+ years as a leader in technology talent development and customer success at Synopsys and Applied Materials. 

As an Executive Coach, Speaker, Facilitator, Leadership Advisor, and Podcast Host, she has helped leaders in tech build high-performing teams, avoid burnout, and be present for the moments that matter. She brings multidimensional leadership skills to our endeavors with lipedema.

Lisa is actively raising awareness for Lipedema as she discusses her journey of discovering that she’s been living with this disease, a misunderstood and underdiagnosed condition affecting as many as 1 in 11 women.

contact: [email protected]

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Life with Lipedema

“The numbness, the pins and needles, my legs are just not normal.”

~Amanda, Stage 2 Lipedema

“It just didn’t make any sense to me that I had lost so much weight, I was eating and exercising better than ever, and still my legs and hips didn’t change.”

~Lisa Marie, Stage 2 Lipedema

“People look at me and just say ‘lose weight.’  It’s not that simple. It’s not my fault.”

~Ivonne, Stage 3 Lipedema

About The Lipedema Project

The Lipedema Project, Inc. is a 501(c)3 non-profit organization devoted to increasing awareness and providing education, research, and treatment for lipedema through online and face-to-face programs and community-building.

The Lipedema Project was founded in 2014 by Dr. Mark L. Smith, MD, FACS and Catherine Seo, PhD to begin the research and treatment for lipedema, a chronic fat disorder. Lipedema is a disease involving abnormal fat deposition resulting in pain, immobility, and lymphatic disturbances. Lipedema progresses over time often developing lymphedema, a chronic condition called lipo-lymphedema.

With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed, that resources are invested in understanding this disease and how it can be treated, and that patients have the support, knowledge, and options to manage these chronic conditions.

NOTE: Megan Pfeffer is no longer associated with Lipedema Simplified, The Lipedema Project, or Keto for Lipedema (Lipoedema). We do not recommend or endorse Megan or her work.

The lipedema documentary is available for viewing on Facebook, Lipedema – The Disease They Call FAT.
The book is available on Amazon, Lipedema – The Disease They Call FAT: An Overview for Clinicians.