Lipedema Medical Resources
General Information and Overview on Lipedema
Wikipedia Page on Lipedema
Wikipedia article about the signs and symptoms, causes, diagnosis, prevention, treatment, prognosis, epidemiology, and history of lipedema
Web MD page on Lipedema
Web MD article on the symptoms, causes, and treatment of lipedema
NHS on Lipedema
NHS article on the signs and symptoms, causes, and treatment of lipedema, as well as related medical advice and information on differentiation from lymphedema
The Genetic and Rare Diseases Information Center (GARD) Overview of Lipedema
Brief article on lipedema’s definition, symptoms, cause, treatment, and more
Education, Awareness, and Advocacy Organizations
American Lymphedema Framework Project
ALFP’s mission is to improve the management of lymphedema and related disorders in the United States while contributing to global international advancement. They partner with the UK-based ILF to advance these goals.
International Lymphoedema Framework
The ILF, a UK-based charity, is dedicated to improving the management of lymphedema and related disorders worldwide.
International Society of Lymphology (ISL)
ISL is an international society whose goal is to coordinate and advance the knowledge of lymphology. Central offices are located in Tucson, Arizona.
Catherine Seo’s original website promotes awareness of lipedema while providing information about the disease.
LIPESE (Lipedema International Partnership of Entrepreneurs to Support and Educate) presents new developments in research and the best-known ways to manage lipedema.
This UK-based web community features information about lipedema and support for women with lipedema.
Lipoma Doc on Lipedema
Dr. Karen Herbst’s website that provides information on fat disorders.
Lymphatic Education & Research Network
LE&RN’s mission is to fight lymphatic disease and lymphedema through education, research, and advocacy. LE&RN seeks to accelerate the prevention, treatment, and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.
This online resource for those who have or are at risk of developing lymphedema is committed to providing accurate information about lymphedema and support to patients.
Lymphoedema Support Network
The LSN is a registered charity run by people who live with lymphoedema in the UK. The website contains information for patients about lymphedema and the experience of living with it, as well as information for health care professionals looking to support patients with lymphoedema.
Lymphology Association of North America (LANA)
LANA strives to promote standards for management of individuals with lymphedema and or related disorders, to establish and maintain certification for medical professionals who provide such services, and to promote lymphedema awareness and the science of lymphology.
National Lymphedema Network
NLN is a non-profit organization proving education and guidance to lymphedema patients, health care professionals, and the general public by disseminating information on the risk reduction and management of primary and secondary lymphedema
Society for Vascular Medicine
The Society for Vascular Medicine is a professional organization whose goals are to improve the integration of vascular biological advances into medical practice and to maintain high standards of clinical vascular medicine.
SU-SO provides resources, support, and advocacy for women and men with breast cancer-related lymphedema.
Tilly Smidt’s website for lipedema patients provides information in multiple languages about the symptoms, stages, and treatment of lipedema.
Compression Garments and Supplies
Biacare strives to provide the best therapeutic solutions available, including compression garments, bandages, and related accessories.
Hawkeye Medical LLC
Hawkeye Medical, LLC is a leading supplier of Durable Medical Equipment to the Washington Metropolitan area.
Haddenham Healthcare provides high quality Haddenham branded products and services for lymphedema, lipedema, and other disorders directly to healthcare professionals and their patients.
JOBST specializes in developing and manufacturing medical compression hosiery of various brands.
Juzo specializes in stockings and compression garments, silver garments, compression wraps, and more. You must buy products in-person at a Juzo dealer
Lohmann & Rauscher
L&R is a globally active company that provides various bandages for compression therapy among other products for wound care and support accessories.
Lymphedema Products carries only the most advanced and medically-responsible products available for the safe and effective management of primary and secondary lymphedema, venous edema, and other edemas.
Lymphedivas is a brand of compression garments that can be found in retailers nationwide. The site provides information on how to properly measure for and wear their garments.
Marena is widely recognized as the world’s leading compression garment manufacturer with a vast array of products and representation in nearly 80 countries around the world.
Medi is a global leader in medical compression that provides both ready to wear and custom compression garments.
Solaris provides several different lines of compression garments for lymphedema and other lymphatic disorders.
CALZIFICIO PINELLI, with its SOLIDEA product line, is a world leader in the industry of graduated compression stockings and tights.
Wingz provides specialized compression garments for lymphedema or lipedema of the upper arms.
Exercise and Wellness
Offering wellness programs for everyone, from young adults to seniors, regardless of health, age or ability level, the Healthy-Steps program improves overall wellness, range-of-motion, balance, strength and endurance, as well as emotional well being and self-image.
Edely Wallace, Executive Director of YogaMatrix, combines her knowledge of lymph therapy and yoga into a unique practice. Lymphatic yoga stimulates and improves lymphatic drainage through both breathing and movement.
Personal Training for Lipedema
Beverly Figueroa provides virtual personal training sessions, including sessions tailored to women with lipedema.
Obesity Action Coalition (OAC)
The OAC is a national non-profit organization dedicated to giving a voice to the individuals affected by the disease of obesity and helping individuals along their journey toward better health through education, advocacy, and support.
This website provides information about weight loss surgery, as well as a rich variety of forums on patients’ questions, experiences, and results.
Organizations by Region
British Lymphology Society (BLS)
The BLS is a charity that strives to advance education and knowledge in the field of lymphology and help create a strategy for improved management of chronic oedema.
Lipoedema UK’s aim is to raise awareness of lipoedema among the UK medical profession as well as the general public, to advocate for early diagnosis and better treatment, and to raise funds for vital research
MLD UK aims to promote public awareness of Manual Lymphatic Drainage from the point of view of both the patient and potential practitioners.
Australia and New Zealand
DermNet NZ was established by the New Zealand Dermatological Society to provide information about skin diseases, conditions, and treatment for patients and their health professionals.
Flinders Medical Centre: Lymphoedema Research Unit
The Lymphoedema Research Unit, led by Professor Neil Piller, employs a holistic approach to the assessment and management of lymphedema and other edemas, and is committed to providing the best and leading edge practice to all of its services.
Lipoedema Australia Support Society
Lipoedema Australia Support Society (LASS) was set up to provide public advocacy, awareness, information, support, and resources for people with lipoedema. LASS has a private Facebook group, support meetings, and up-to-date information.
This German site about lipedema aims to promote more acceptance of lipedema among the public, in collaboration with various public institutions, doctors, and hospitals.
Stichting Nederlandse Lipoedeemdag
This Netherlands-based organization is dedicated to raising regional, national, and international awareness of lipoedema by organizing annual symposiums for both lipedema patients and medical practitioners.
Research on Lipedema and Lymphatics
Gordon Research Conferences
The GRC promote discussions and the free exchange of ideas at the research frontiers of the biological, chemical and physical sciences. Scientists with common professional interests come together for a full week of intense discussion and examination of the most advanced aspects of their field.
International Federation for Adipose Therapeutics and Science
IFATS is a non-profit scientific society that promotes the exchange of information among researchers. IFATS current scientific areas of interest relate to facilitating the development of treatments for excess body fat, the generation of new fat tissue for reconstruction after cancer or birth-related defects, and the use of adipose tissue as a source of mesenchymal stem cells that have the potential to regenerate and repair different body tissues.
The Földi Clinic is a specialized clinic for lymphology that performs both inpatient and outpatient treatment of diseases of the lymphatic system, oncology rehabilitation, and follow-up treatment (AHB).
Klose Training & Consulting was established by Guenter Klose, who was trained in Complete Decongestive Therapy at the world-renowned Foeldi Clinic in Germany in 1984. Klose Training offers the highest-quality Lymphedema Therapy Certification courses available in the US.
North American Lymphedema Education Association (NALEA)
NALEA is specifically organized around training standards for lymphedema therapists. NALEA is currently an alliance of the four lymphedema therapy certification schools responsible for training the majority of Certified Lymphedema Therapists (CLTs) in North America.
The Norton School of Lymphatic Therapy
The Norton School of Lymphatic Therapy is the premier educational institution for training medical professionals to become experts in the treatment of pathologies related to the lymphatic system. Norton School students receive thorough and rigorous training in the Foeldi Method of Complete Decongestive Therapy (CDT), the therapeutic system regarded as the “Gold Standard” for the treatment of lymphedema by the International Society of Lymphology.
The Dr. Vodder School International is the training program to take if you are looking for the source of the original Dr. Vodder Method of Manual Lymph Drainage (MLD) and Combined Decongestive Therapy.
About The Lipedema Project
The Lipedema Project was founded in 2014 by Dr. Mark L. Smith, MD, FACS and Catherine Seo, PhD to begin the research and treatment for lipedema, a chronic fat disorder. Lipedema is a disease involving abnormal fat deposition that can result in pain, immobility, and lymphatic disturbances. Lipedema progresses over time often developing lymphedema, a chronic condition called lipolymphedema.
With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed, that resources are invested in understanding this disease and how it can be treated, and that patients have the support, knowledge, and options to manage these chronic conditions.
Currently, The Lipedema Project, Inc. is a 501(c)3 non-profit organization devoted to increasing awareness and providing education, research, and treatment for lipedema through online and face-to-face programs and building community.
The lipedema documentary is available for viewing on Facebook, Lipedema – The Disease They Call FAT.
The book is available on Amazon, Lipedema – The Disease They Call FAT: An Overview for Clinicians.