Lipedema Fat Disease Symposium

April 17th & 18th, 2015 | New York City

It’s an exciting time for Lipedema Research, and we are excited to bring together the top medical researcherssurgeons and medical professionals from around the world to come together in support of finding a cure for this often misunderstood (and misdiagnosed) disease.

COURSE DIRECTOR:
Mark L. Smith, MD, FACS
Director, Friedman Center for Lymphedema Research & Treatment
KEYNOTE SPEAKER:
Professor Etelka Földi, MD
Physician-in-Chief of the Földi Clinic Special Clinic for Lymphology Hinterzarten, Germany
GUEST FACULTY: 
Matthew Carmody, MD, Jens Diedrichson, MD, Susan Fried, PhD, Kimberly Gudzune, MD, MPH, Karen Herbst, MD, PhD, Guenter Klose, MLD/CDT, CI, Gwen Randolph, PhD, Stefan Rapprich, MD, Stanley Rockson, MD, Tilly Smidt, Patient Advocate, Catherine Seo, PhDc, Melody Swartz, PhD

Lipedema Symposium List of Weekend Activities

The Lipedema Symposium has sessions planned for medically trained professionals as well as for patients and their supporters. Friday’s Symposium includes the CME course Setting the Research Agenda For Lipedema: Steps Towards a Cure, directed by Mark L. Smith, MD, FACS. On Friday evening there is a cocktail reception and film premiere for the lipedema documentary
The Disease They Call FAT, a film by filmmaker and patient Catherine Seo.

Setting the Research Agenda for Lipedema:
STEPS TOWARDS A CURE

COURSE OBJECTIVE

Learn current methods for evaluating, diagnosing and treating Lipedema and understand pertinent physiology, research opportunities and obstacles to care.

Lipedema is an under-recognized condition characterized by the accumulation of subcutaneous fat in bilateral lower extremities, typically accompanied by tenderness, edema and bruising. Physicians frequently misdiagnose patients as being obese or having lymphedema leading to improper treatment and progression of symptoms. 

Eventually Lipedema can progress to Lipo-lymphedema, where the progressive fat accumulation leads to lymphatic insufficiency. Exercise and weight loss tend to worsen the relative body disproportion as the fat is lost preferentially from the trunk rather than the legs resulting in patient frustration and poor compliance. This course will review the diagnostic criteria, work up and differential diagnosis for patients with Lipedema. Surgical and non-surgical treatment options will be discussed.

COURSE DIRECTOR:

Mark L. Smith, MD, FACS

Chief, Division of Plastic Surgery, Mount Sinai Beth Israel Director, Friedman Center for Lymphedema Research & Treatment; Professor, Department of Surgery, Icahn School of Medicine at Mount Sinai

DETAILS

Date: Friday April 17th, 2015
Time: 8:00 am – 4:30 pm
Location: W Hotel, Union Square,
201 Park Avenue South, (see map)
New York City, New York

Registration Fees:
$255.00 with CME Credits
$195 without CME Credits

Participants are required
to register online at
www.chpnet.org/cme

ACCREDITATION STATEMENT. Mount Sinai Health System Hospitals: Mount Sinai Beth Israel, Mount Sinai St. Luke’s and Mount Sinai Roosevelt, are accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

CREDIT DESIGNATION STATEMENT. Mount Sinai Beth Israel designates this live activity for a maximum of 7.00 AMA PRA Category 1 Credits TM. Physicians should only claim the credit commensurate with the extent of their participation in the activity

Lipedema Solutions Forum
PATIENT PERSPECTIVES

FORUM OBJECTIVE

While little is known about lipedema, there are recommended options that can be taken to reduce the impact and stop the progression of the disorder.

Lipedema Solutions Forum presents various methods to help in reducing the impact of lipedema on your quality of life. We will have sessions on the following:

• Dealing with Lipedema:
How to advocate for yourself with your healthcare providers

• Complete Decongestive Therapy:
Manual Lymphatic Drainage (MLD) & Compression

• The Role of Exercise: lymphatic yoga, exercise & meditation

• The Role of Diet: nutrition & supplements

• Surgical Treatment: pros & cons, a panel of women who have had liposuction

FORUM DIRECTOR:

Catherine Seo Director, Lipedema Simplified, LLC
Partnered with the Friedman Center for
Lymphedema Research & Treatment
Cambridge, MA

CO-CHAIRS:

Shari Fetzer, Chair, Lipoedema UK
Kimberley Montgomery, Chair, USA

DETAILS

Date: Saturday April 18th, 2015
Time: 8:00 am – 2:00 pm
Location: Mount Sinai Beth Israel
Phillips Ambulatory Care Center,
The Friedman Auditorium, 2nd floor

10 Union Square East (see map)
New York City, New York

Registration Fees:
$125 all participants

Special Pricing:
Non-physicians attending the Friday, April 17th Symposium and the Saturday, April 18th Solutions Forum: $225

Participants are required
to register online at
www.chpnet.org/cme

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The Disease They Call FAT, Lipedema Documentary

Cocktail Reception & Film Premiere

FILM SCREENING

There are an estimated 17 million women in the USA that have the fat disorder lipedema and don’t know it, and many more globally. Filmmaker and patient Catherine Seo brings us on a journey of  discovery, as she explores this misunderstood and commonly misdiagnosed disease.

When her own lipedema diagnosis was overlooked and surgery resulted in dire complications, Catherine began a journey of inquiry rather than face immobility and chronic pain. During her research, she traveled across the US and to Europe and the UK, looking for the answers to her many questions, interviewing experts and patients as she went along. As she began to understand the complexities of the little known fat disorder of lipedema and the prevalence of anti-fat bias in healthcare, she also discovered the innovation of a handful of doctors in treating this disease. As the pieces came together, a bigger story emerged. The documentary, The Disease They Call FAT, is that story. Produced by Lipedema Simplified Productions in partnership with the Friedman Center for Lymphedema Research & Treatment.

Donations are invited. Please send your tax-deductible donation to
https://philanthropy.mountsinai.org/lymphedema

HOSTED BY:

Catherine Seo, PhDc
Founder, Lipedema Simplified
Director & Producer

Mark L. Smith, MD, FACS
The Friedman Center for Lymphedema
Research & Treatment
Executive Producer

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DETAILS

Date: Friday April 17th, 2015
Times:
Cocktail Reception
4:30 pm – 5:30 pm
Film Premiere
5:30 pm – 7:30 pm

Location: W Hotel, Union Square,
201 Park Avenue South,
New York City, New York
see hotel website

Registration Fees:
FREE! This event is free. Tickets are for Attendees of the Symposium & Solutions Forum only.

Participants are required
to register online at
https://lipedema-premiere.eventbrite.com

Get Involved! Join the Lipedema Project Community

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Lipedema Fat Disorder Logo

A collaborative partnership between the Friedman Center for Lymphedema Research & Treatment at Mount Sinai Beth Israel and Lipedema Simplified, LLC, the Lipedema Project is a comprehensive transmedia program to increase awareness and provide education, research and treatment for lipedema.

Lipedema is a disease involving abnormal fat deposition that can result in pain, immobility and lymphatic disturbances. With obesity reaching epidemic proportions and anti-fat bias prevalent in health care, it becomes critical that patients are correctly diagnosed and that resources are invested in understanding this disease and how it can be treated. The Friedman Center is committed to raising awareness, providing education, and funding research to identify treatment and a cure for lipedema.

About The Friedman Center

The Friedman Center for Lymphedema Research & Treatment at Northwell Health in New York was founded in 2013. Its focus has been on offering solutions for patients with lymphedema, a debilitating condition that occurs in many patients after cancer treatment.

The Friedman Center’s scope of care now includes treatment for lipedema, a condition that can also result in lymphedema. To that end, the Friedman Center has created the Lipedema Project, a comprehensive program to increase awareness and provide education, research and treatment for lipedema. The Friedman Center is proud to sponsor the lipedema documentary, The Disease They Call FAT, the 1st International Symposium on Lipedema, the Lipedema Think Tank, the Lipedema Solutions Forum for women with lipedema in April 2015 and this online CME eduring materials course for physicians.