“I knew my legs were larger than they should be. They just didn’t match the rest of my body. No matter what I did, diet &exercise, nothing seemed to work.”
~Cherity, Stage 2 Lipedema

Lipedema Model

“Finding out I have lipedema was more of a relief, it wasn’t a scary thing at all. I knew what I had and all I had to do was figure out how to live with it.”
~Nicole, Stage 2 Lipedema

Robin

“An estimated 17M women in the US  struggle with lipedema, and most  don’t know it. Awareness,  education and research are top priorities.”
~Robin, Stage 1 Lipedema

Lipedema

Lipedema is a fat/lymphatic disease involving abnormal fat deposition resulting in pain, immobility, and lymphatic disturbances. With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed and that resources are invested in understanding this disease and how it can be treated.

Lipedema primarily affects women. It initiates at times of hormonal disturbance, puberty, pregnancy, peri-menopause, and with gynecological surgery.

LIPEDEMA PROJECT’S MISSION: Raise awareness through advocacy, education, and research to improve women’s lives with lipedema and related disorders.

LIPEDEMA PROJECT’S VISION: Be the voice for women living with lipedema.

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All proceeds to go to support the work of The Lipedema Project, Inc.

Catherine Seo, PhD

Catherine Seo, PhD
Founder & CEO, The Lipedema Project

Catherine Seo, PhD is the producer and director of the documentary The Disease They Call FAT. When confronted with almost certain immobility and complications from misdiagnosed lipedema, she traveled the world interviewing other patients, doctors, surgeons and experts looking for answers. The documentary is this story.

Her research is focused on empowering women who experience the distortions of body image as represented in the media applying self-compassion and other meditation techniques. Catherine holds a doctorate in Media Psychology and is the Founder and Director of Lipedema Simplified, LLC.

contact: [email protected]

MORE ABOUT DR CATHERINE SEO >>>

Leslyn Keith, OTD, CLT-LANA

Leslyn Keith, OTD, CLT-LANA
President, The Lipedema Project

Leslyn Keith, OTD, CLT-LANA is President & Director of Research for The Lipedema Project, an instructor in lymphedema therapy for Klose Training and Consulting, and has a private practice in lymphedema/lipedema therapy.

She has completed research and published about lifestyle change, including a ketogenic way of eating, for participants who were diagnosed with lymphedema and obesity. She recently published the book The Ketogenic Solution for Lymphatic Disorders.

Leslyn has a doctorate in Occupational Therapy and has been treating lymphatic disorders since 2000.

contact: [email protected]

MORE ABOUT DR LESLYN KEITH >>>

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Life with Lipedema

amandatestmonial

“The numbness, the pins and needles, my legs are just not normal.”

~Amanda, Stage 2 Lipedema

lisamarietestimonial

“It just didn’t make any sense to me that I had lost so much weight, I was eating and exercising better than ever, and still my legs and hips didn’t change.”

~Lisa Marie, Stage 2 Lipedema

ivonnetestmonial

“People look at me and just say ‘lose weight.’  It’s not that simple. It’s not my fault.”

~Ivonne, Stage 3 Lipedema

About The Lipedema Project

The Lipedema Project, Inc. is a 501(c)3 non-profit organization devoted to increasing awareness and providing education, research, and treatment for lipedema through online and face-to-face programs and community-building.

The Lipedema Project was founded in 2014 by Dr. Mark L. Smith, MD, FACS and Catherine Seo, PhD to begin the research and treatment for lipedema, a chronic fat disorder. Lipedema is a disease involving abnormal fat deposition resulting in pain, immobility, and lymphatic disturbances. Lipedema progresses over time often developing lymphedema, a chronic condition called lipo-lymphedema.

With obesity reaching epidemic proportions and anti-fat bias prevalent in healthcare, it becomes critical that patients are correctly diagnosed, that resources are invested in understanding this disease and how it can be treated, and that patients have the support, knowledge, and options to manage these chronic conditions.

NOTE: Megan Pfeffer is no longer associated with Lipedema Simplified, The Lipedema Project, or Keto for Lipedema (Lipoedema). We do not recommend or endorse Megan or her work.

The lipedema documentary is available for viewing on Facebook, Lipedema – The Disease They Call FAT.
The book is available on Amazon, Lipedema – The Disease They Call FAT: An Overview for Clinicians.